#caregivers
I'm having a reeeealy bad day today. #caregivers #mentalhealth #mentalillness @caregivers
Reposting this in honor of my dad, #WorldAlzheimersMonth, and #FTDAwarenessWeek. Sending strength to everyone facing #dementia and their #caregivers
Must-read essay on the financial costs of #dementia, in this case #LewyBody #dementia, and the utter cruelty and absurdity of #Medicare defining #dementia like this: “We don’t consider dementia a medical issue." Tell that to the person suffering with the #disease; tell that to the caregiver.
Reposting this in honor of my dad, #WorldAlzheimersMonth, and #FTDAwarenessWeek. Sending strength to everyone facing #dementia and their #caregivers
Must-read essay on the financial costs of #dementia, in this case #LewyBody #dementia, and the utter cruelty and absurdity of #Medicare defining #dementia like this: “We don’t consider dementia a medical issue." Tell that to the person suffering with the #disease; tell that to the caregiver.
My heart. #FTD, and other forms of #dementia, are so cruel, "merciless," to quote from this devastating article. This sentence, written by the mother of Anna, who at 36 developed symptoms of #bvFTD (behavioral #variant FTD), spoke to me loudly: "I didn’t cope, I existed." https://www.yahoo.com/lifestyle/then-knew-something-very-wrong-150000846.html
It is #FTDAwarenessWeek and #WorldAlzheimersMonth.
Share your story. Break the #stigma. Support the #Research. #Listen to and do what you can to help the person with #Dementia and their #caregivers
My heart. #FTD, and other forms of #dementia, are so cruel, "merciless," to quote from this devastating article. This sentence, written by the mother of Anna, who at 36 developed symptoms of #bvFTD (behavioral #variant FTD), spoke to me loudly: "I didn’t cope, I existed." https://www.yahoo.com/lifestyle/then-knew-something-very-wrong-150000846.html
It is #FTDAwarenessWeek and #WorldAlzheimersMonth.
Share your story. Break the #stigma. Support the #Research. #Listen to and do what you can to help the person with #Dementia and their #caregivers
@Eve
@NakjiKiss3
@Ruthie
@abejaclaustro
Today is #WorldAlzheimersDay and I hazard to say that many late-stage #Alzheimers patients will be oblivious to it.
May I therefore propose to observe this day in global solidarity with all #caregivers who have to contend with #dementia patients in their daily lives and also with all researchers still working diligently to expand science's understanding of this disease so as to find better treatment and diagnostic tools for all. Auspicium melioris aevi!🙏😍🌈
Lovely story about the healing powers of #music in people with #dementia (and their #caregivers). Shout-out to #Dr.JoshuaGrill, #neurologist #UCI.
https://mind.uci.edu/the-amazing-grace-of-music-to-alleviate-memory-loss/
Lovely story about the healing powers of #music in people with #dementia (and their #caregivers). Shout-out to #Dr.JoshuaGrill, #neurologist #UCI.
https://mind.uci.edu/the-amazing-grace-of-music-to-alleviate-memory-loss/
@abejaclaustro @Ruthie
#Dementia care & the societal challenges of #aging communities are our contemporary conundrum. It is sad that #caregivers (both amateurs & professionals) are not afforded sufficient resources nor support. 1 in 10 Japanese are now in their 80's or older - so will many other countries be aging.
Thru more sharing, surely, better sociopolitical frameworks & policies supporting empathetic #agedcare & resources for the associated caregivers ought to become top #election issues?
Please consider supporting this brief by the National Association of Federal Retirees with recommendations for the Federal 2024 Budget.
The brief calls for a national seniors' strategy, long term care standards, national pharmacare, and cost of living action, among other things.
#CdnPoli #FederalBudget #NationalSeniorsStrategy #LongTermCare #Pharmacare #Caregivers #Veterans #Phoenix #PSP #CostOfLiving
https://www.federalretirees.ca/en/news-views/news-listing/august/federal-budget-2024-take-action-for-older-canadians
My partner moved into the memory care/assisted living place today (from rehab).
Fully expecting the first period may be rough but hopefully it's a good environment for her.
I have to resist trying to be over there all the time.
This should have been more obvious to me, but finally sinking in that I need to move to a new role in her life.
I'm no longer the hands-on caregiver. I need to learn to trust others to take good care of her day-to-day.
It's hard.
I was invited by a local county judge to present my caregiver perspective at a regular monthly meeting of the Behavioral Health and Criminal Justice Advisory Committee of Travis County, Texas. The group's goal is reducing the entanglement of persons with mental illness in the criminal justice system. My wife joined me in presenting, yesterday, and we both thought it went great! We spoke about our personal experiences as parents and caregivers for an adult living with schizophrenia and shared data from author Seth Stoughton, the Police Executive Research Forum (PERF), and the CAHOOTS program in support of improving the response to those in crisis. The committee members were engaged and we received enthusiastic applause at the end of our presentation. I hope we made a lasting difference. Our five wrap-up suggestions:
1. Reduce the contact persons with serious mental illness have with the justice system:
a. Certified Peer Support Specialists could be hired to conduct frequent telehealth wellness checks and paid a stipend by the minute for the time they spend on their cell phones with clients.
b. Caregivers could benefit from de-escalation training and access to help from outside the justice system, perhaps from a network of family and friends who undergo training to become Certified Family Peer Specialists.
2. Pledge that first-responders will acquire skills for an unarmed response to those without a gun. A mutual “no guns” agreement would require that no gun is available to a person with serious mental illness for there to be a private response. This would increase the safety of all stakeholders. Such a program is one that caregivers could get excited about.
3. Minimize coercion by making hospitality a leading feature of the diversion center. Make it a “living room” where persons want to go for help. Make it a place all stakeholders will encourage persons with mental illnesses to go for help. We don’t want any stakeholders to discourage use of the diversion center.
4. For those who hesitate to accept treatment, offer financial incentives for psychotic and homeless persons to try a long-acting injectable antipsychotic, like the incentives offered to blood plasma donors and in clinical trials of new medications—if they are competent to reject treatment, they are competent to accept treatment with an incentive.
5. Don’t forget the <1% with unstable psychotic disorders who have lost reality contact and are homeless. Unless they are already known to be non-responders to prior treatment, consider a brief involuntary commitment at a facility separate from the diversion center and with the approval of collaborating judges and physicians. Develop new ways to improve the lives of treatment non-responders.
#MentalHealth
#MentalIllness
#Psychiatry
#Psychology
#Criminology
#Homelessness
#Caregivers
#Schizophrenia
"No support was offered, no treatment plan, no signposting, no leaflets. I can’t tell you how lost and frightened I felt." #Scientists & #neurologists are working hard to understand what is happening in the #brain of someone with #Alzheimer's, #FTD, #CTE, #vasculardementia, and other forms of #dementia. But we know there are ways of helping people w/#dementia (not nearly enough, but still) & #caregivers.
It should not be like this.
https://www.yahoo.com/lifestyle/husband-alzheimer-44-symptoms-didn-160000744.html
#EndAlz
#WorldAlzheimer'sMonth
How To Go #BackToSchool #Inclusively
With #diversity and #inclusion issues dominating the news cycle, many #parents, #caregivers and #educators are wondering how to create #inclusivespaces and continue inclusive #conversations with #young people this back to school season.
#Women #Transgender #LGBTQ #LGBTQIA #Education #GayKids #TransKids #Educators #Parents #Allies #Representation #Culture
@cobalt @caregivers From my own family, I feel and hear All that!! #caregivers
In #Texas the state pays care givers $10.60/hr. A new Dairy Queen employee in Austin is paid $15.60/hr.
https://www.texasobserver.org/community-based-caregiver-wages-2023/
👀 @TexasObserver
https://newsie.social/@TexasObserver@texasobserver.social/111024916484919822
Previously: Disabled Texans struggle to get the care they need outside of state institutions because of forced low pay rates for #caregivers, which are among the worst in the nation.
https://www.texasobserver.org/community-based-caregiver-wages-2023/
#disability #TXlege #news #Politics #USpol #HumanRights #workers
#AttachmentQandA (10): #Child-#Father #Attachment
ANSWER SUMMARY
▶️#Attachmenttheory and research nowadays more strongly considers #dads as #caregivers & attachment figures than ever, but much remains to be learned.
COMPLETE ANSWER & FURTHER READING
➡️https://pvrticka.com/attachment-qanda/
Texas has remained second-to-last in funding in for our most needy citizens since that metric has been tracked.
Wages for community-based caregivers for those with intellectual and developmental disabilities remain pegged at $10.60/hour, below the starting pay for most fast food workers. Cody Clark, who runs an agency that provides these #caregivers, shares his struggle to offer safe, lifesaving care: https://www.texasobserver.org/community-based-caregiver-wages-2023/
Technology-Based Interventions to Address Social Isolation and Loneliness Among Informal Dementia Caregivers: A Scoping Review
"...#Technology-based interventions addressing #social isolation and loneliness in informal #dementia #caregivers have the potential to overcome barriers to low uptake of services and withdrawal from interventions and improve the sustainability of the interventions..."
https://www.jamda.com/article/S1525-8610(23)00713-2/fulltext?dgcid=raven_jbs_aip_email
#TheMetalDogArticleList
#MetalInjection
METALLICA Postpones Show As JAMES HETFIELD Falls Ill With COVID
Get well soon, James!
https://metalinjection.net/news/metallica-postpones-show-as-james-hetfield-falls-ill-with-covid
#Metallica
#JamesHetfield
#COVID19
#Symptoms
#CareGivers
#MentalHealth
The monthly #MEAction support group for partner caregivers is tomorrow
Sunday, September 3rd
12 pm PT / 3 pm ET / 8 pm BST
Caregivers who are spouses, partners, or significant others of people with ME/CFS, Long Covid, and associated conditions are invited to join.
https://www.meaction.net/event/me-partner-caregivers-support-group/2023-09-03/
September is #WorldAlzheimer'sMonth. Let's end the #stigma, support #caregivers, fund #research for all types of #dementia, and #EndAlz.
It #BogglesTheMind that #Biden's proposal to support #caregivers was voted down by members of #Congress who desperately need caregivers.
On #NationalGriefAwarenessDay, Remembering the #AIDS #Caregivers
We don’t often talk about those who #survived and #endured, and the #pain they suffered as they watched their #lovedones slip away.
#Women #Transgender #LGBTQ #LGBTQIA #Health #Healthcare #HIV #AIDS #SayTheirNames
https://www.advocate.com/voices/national-grief-awareness-day-aids
It is an honor to be virtually presenting at #Hawaii's Rural Health Echo initiative. I will be discussing the #memoir I wrote with #neurologist Dr. Bruce Miller, what I've learned about and from #caregivers, and the value of #narrativemedicine. #EndAlz
It was just the case of a married couple that felt sexual disconnection, like so many out there...
Instead, Sari van Anders and friends from #QueensUniversity turned it in an amazing paper targeting the root causes that frame the role of women in our society as oppressed household laborers and #caregivers.
(just a few out-of-context inputs on neoliberism for my taste, but a must read for every #feminist interested in creating new political discourse)
#SciHub link:
@NakjiKiss3 Hope that you both get all the support necessary!🙏
It's a very difficult & too-often overlooked topic: care for the sustainability of #caregivers. The multiple issues, of familial, emotional, societal, rational, & economic nature, often intermingle & are unique for every family/individual. However tt is not an excuse for government & society not to lend their support. Researchers project #dementia & #alzheimers to continue rising as most countries continue their #ageing trajectories.
@dbaplanb @caregivers We had last minute cancellation by ComfortKeepers yesterday a.m. w/out replacement. This morning I called 911 to have EMTs raise my husband up to his chair, we had only gotten him part way up trying for abt 45 min. and he was face down to seat of chair like a rag doll cz he's still recovering from UTI. #Parkinsons #Caregivers
#LetterOfTheWeek
Forum: Treat #caregivers as patients too to better supervise their mental #health
"When my late mother was initially suspected of having #dementia, I didn't know how the following months as caregiver wld affect my well-being. It became tougher by the day as I had to cope w my mother’s mood swings alongside her failing health .. none of the medical professionals asked if I was coping all right. Caregivers, feeling guilty or helpless, can become depressed"
https://www.straitstimes.com/opinion/forum/forum-treat-caregivers-as-patients-too-to-better-supervise-their-mental-health
I have a love - hate relationship with #hospice.
#Caregivers will understand.
From 15 Aug: If women in the US got paid for their caregiving work, they would make an additional 27 billion per year, according to a new analysis. - https://www.bloomberg.com/tosv2.html?vid=&uuid=b0038117-3b6b-11ee-939c-4f6272637566&url=L25ld3MvYXJ0aWNsZXMvMjAyMy0wOC0xNC91cy13b21lbi13b3VsZC1tYWtlLWFuLWV4dHJhLTYyNy1iaWxsaW9uLWlmLXBhaWQtZm9yLWNhcmVnaXZpbmc/c3JuZD1wcmVtaXVt #equality #feminism #caregivers #economics
"More than 6 million people in the United States have Alzheimer’s, and about two-thirds of them are women." https://www.washingtonpost.com/wellness/2023/08/09/male-caregivers-alzheimers-challenges-tips/ (gifted)
To those #politicians who voted against providing assistance to #caregivers in the #Biden legislation that would have helped those caring for loved ones with #dementia and other #illness, read this and confront what your lack of #empathy means. #EndAlz
"More than 6 million people in the United States have Alzheimer’s, and about two-thirds of them are women." https://www.washingtonpost.com/wellness/2023/08/09/male-caregivers-alzheimers-challenges-tips/ (gifted)
To those #politicians who voted against providing assistance to #caregivers in the #Biden legislation that would have helped those caring for loved ones with #dementia and other #illnesses, read this and confront what your lack of #empathy means. #EndAlz
[PSA] British Columbia: mental, emotional support
Stranger gave me strength when I was at the end of my rope
https://www.cbc.ca/news/canada/first-person-stranger-at-the-end-of-the-line-1.6928875
Family Caregivers of BC
https://www.familycaregiversbc.ca
https://www.facebook.com/FamilyCaregiversBC
* nonprofit; supports >1 million people who provide physical/emotional care to family member, friend, neighbor
* provides leadership to strengthen voice of caregivers & significance of their role
#FCBC #PublicHealth #MentalHealth #caregivers #EmotionalSupport #altruism
#Mother Says That She & Her #nonverbal #Autistic #Son Were #KickedOut Of #Cinemark’s #Hazlet12 #MovieTheater in #NewJersey After She #Assisted Him In The #Women's #Restroom.
The Mom explained the situation to the theater manager, who claimed that "grown men were not allowed in the women's restroom."
#Women #Transgender #LGBTQ #LGBTQIA #Disabilities #Autism #Caregivers #Hate #Bigotry #Discrimination #Transphobia
@constantorbit woukd like to read it but a paywall. Is there a gift link? What I’m wondering is: do families with one or more members who have #ChronicIllness or #Disability or #Caregivers have more of these life changes that average? It always seems like we run into far more and faster episodes.
What can make the conditions for #caregivers better? Alva Rodriguez says, "$25 per hour can't solve everything. But it would make this job, one of the toughest and worst-paying you will find, a little bit better."
Read on: https://irvine.ly/44IxurX
Remember how I was worried about my partner falling? Well here we are at the ER. @caregivers #caregiver #caregivers #parkinsons
Apply by 31/07 👇🏻
#PhD #Studentship: How #Children Get “In Sync” with their #Caregivers and How Optimal #Synchrony Benefits Child #Development, #Health and #Wellbeing
Main #research #method: #fNIRS #hyperscanning.
With @PVrticka at the Department of #Psychology, #University of #Essex (#Colchester, #UK).
UK home students only.
I have a fully funded 3-year #PhD #studentship for a #UK #home #student in my @SoNeAtLab at the #Department of #Psychology, #University of #Essex in #Colchester:
Project title: How #Children Get “In Sync” with their #Caregivers and How Optimal #Synchrony Benefits #Child #Development, #Health and #wellbeing.
Main method: #fNIRS #hyperscanning.
Please get in touch in case of questions. Thank you.
@RickiTarr @patmadigan @msquebanh this tracks with the stats showing the percent of elder #caregivers who die before the person for whom they give care.
Support from #parents and #caregivers plays a crucial role in the #wellbeing and development of #transgender, #nonbinary, and other #genderdiverse #children. Studies consistently show that #rejecting or exhibiting #hostility towards these children significantly increases their risk of #anxiety, #depression, #substanceabuse, and even #homelessness. Tragically, they also face a higher risk of #suicide due to rejection, #bullying, and #victimization.
(10/20) #Transgender
CMS To Publicly Release All Ownership Info Of Home Health and Hospice Agencies
This is good news for transparency. As a homebound disabled person, I often leave a terrible company for another terrible company only to learn they are owned by the same terrible people.
Sometimes a shotty service closes down and another pops up.
I should note, my issues aren't with the end providers like #nurses, aides, etc. They are victims, too.
If you get paid by #Medicaid to care for a loved one who lives in your home through a state #MedicaidWaiver program, it probably is income / #SelfEmployment tax free.
Many #IRS #TAX #IncomeTax #TaxPreparers / #Accountants don't know this.
🔗 'Certain Medicaid Waiver Payments May Be Excludable From Income' via IRS
https://www.irs.gov/individuals/certain-medicaid-waiver-payments-may-be-excludable-from-income
https://brighterworld.mcmaster.ca/articles/covid19-ageism-canada-pandemic/ “Most #COVID deaths are in #older people. That’s not just a problem for them. It’s a problem for everyone. When older adults are healthy they are an incredible asset to our communities — they are #caregivers, #volunteers and repositories of #knowledge and culture. When they are unwell it is a tremendous strain on them, their caregivers and our #HealthCareSystem.”
My wife, Penny, & I was going to go to the Funny Bone comedy club on Feb 13th but #Covid Alert went up to medium & we decided to cancel
We bought tickets months ago
We made extra arrangements because of my mobility & #ParkinsonPlus. I just wanted to give her a nice #Valentines date out. It's been so long. More than a decade due to my health
She came to me & informed me we weren't going & that the best night out is 10,000 more nights in with me. I was glad #COVID19 #Love #Family #Caregivers
@calimari Not a scientist but very interested in the important research work you're doing. If you have the time and don't mind answering a question... Is there a method for sanitizing medicine bottles so pharmacies can reuse them? A #caregivers group I belong to has been having a conversation about how this type of plastic can be reused or eliminated and what kind of public awareness campaign we might be able to create in a push for change. My Google search came up with nothing useful.
Someone posted this "inspiration" in an online #caregivers support group and I'm giving it a big old NOPE.
If you're a #caregiver, I encourage you to **not** give your all. Please, be selfish. Find a way to put yourself first some times. An engine cannot run on empty. Making yourself a martyr is only going to get yourself in your own grave faster than you expect.
Seriously, reserve some of your energy to take care of yourself. You are worth it.
From 15 Jan: Caregivers of people living with dementia are treated negatively by others and face discrimination, finds a new study led by UCL researchers. - https://medicalxpress.com/news/2023-01-caregivers-people-dementia-discrimination.html #dementia #healthcare #caregivers
@briandavidgregory Masto #caregivers, you did not disappoint with your #DarkHumor #funeral playlist suggestions. Thanks for helping to #NormalizeCaregiving and for bringing a smile to a topic that looms so everpresently large in so many of our lives.
25/
“Take Care of Yourself and Have a Life Outside of Caregiving
Please don’t make #caretaking your whole life. Make sure that you are doing the things that are restorative to you, and that make your life rewarding outside of me. And don’t feel guilty doing them! You deserve to have an identity outside of this illness, and you will be a better caregiver to me if you take care of yourself”
#caring #caregiver #caregivers #caregiving #carer #carers #longtermillness #chronicillness
We Can’t Combat Inequality Without First Valuing Care Work
https://truthout.org/articles/we-cant-combat-inequality-without-first-valuing-care-work/
This is an article that should be retooted (is that a word?) forever! Can't overemphasize its importance for a human economy...which means, a feminist socialist one, obviously.
#Caregivers #Feminism
Asher is back in his regular #guardian #cat position. He assigned himself daily job of #guarding my #Dad ❤ If he doesn't see Dad on couch or in kitchen, Asher runs to bedroom to check. My Dad really loves having a #dedicated security cat guardian 🥰
#CatsOfMastodon #MastoCats #CatsOfSDF #GrayTuxedoCat #FelineFriday #CatsWithJobs #SeriousCat #CatAtWork #GuardCat #CaturdayIsEveryday #CatLovers #MightyMao #AsianMastodon #CaregivingLife #Family #Love #Caregivers #VictoriaBC #yyj #Saanich #Teochew
I’ve been thinking, for a while, about #caregivers.
I struggle with a lot of things in daily life due to being #disabled with #MEcfs. Some things, I think a #caregiver could help with; some things, not so much. Helping me clean my apartment would be a big help, for example.
I’m in the process of a #DisabilityBenefits claim in the US. Does anyone know whether that - if I get approved - would come along with the option for a caregiver from the government or something?
@rbreich #caregivers snd #healthcare workers both! @rt
Sign on to Open Letter to fund pandemic plans/policy: https://actionnetwork.org/forms/tell-congress-fundpandemicplans-sign-on-to-the-open-letter/
#FundPandemicPlans #PandemicsareChronic
#COVID19 #COVID #LongCOVID #ChronicallyIll #Disabled #Caregivers #HealthcareProfessionals #FrontlineWorkers #EssentialWorkers
@ct_bergstrom. Thank you for this excellent essay. I found #COVID threads by @WesElyMD especially valuable. Through the bird app, I also "met him," which was a thrill. Because of my interest in #medhum, #narrativemedicine, and #dementia, especially #Alzheimers, I'm trying to reconnect with some of the #doctors, #caregivers, and people with #dementia whom I was following. And of course, am finding new people to follow.
Japan opens its doors wide to immigration http://feeds.boingboing.net/~r/boingboing/iBag/~3/mZE49ta0fkY/japan-opens-its-doors-wide-to.html #boingboing #caregivers #elderly #immigration #Japan #maniual_labor #trades