#fatigue
I haven't said this publicly anywhere, but I found out I have #celiac disease a few weeks ago. Being a person who just loves cooking and food, it is sad.
HOWEVER, since I stopped eating gluten I have had good moods. I don't think I've had a good mood (without drugs) since I was 12.
If you're chronically #fatigue and #depressed, maybe get the celiac blood test. It's unlikely that's your issue, but if it is, I cannot emphasize what a complete change it is in everything about you.
Somehow, we managed to dial into and collaborate via conference calls without this challenge.
Maybe there are other reasons for the under-stimulation?
#stress #fatigue #stimulation #collaboration #Zoom #ConferenceCall #culture #COVID19
"Identifying Digital Endpoints For Fatigue To Drive Better Clinical Care And Treatments"
This article provides more background on: IDEA-FAST, a consortium of 46 partners spanning 15 countries that aims to develop digital biomarkers for #fatigue and #sleep disturbances and track their relationship to activities of daily living and health-related quality of life.
Not enough coffee or middle fingers for today. #chronicillness & #fatigue isn't "oh I'm so tired" - it's like "ok bitch, you used more energy than we had so we won't remember the word thumbnail for the next 24 hours - and you're going to need that word."
J'ai fait un rêve de compétition, à base de collègues, space invaders, chasse aux trésors, poursuite par des tueurs à gage, urbex, maison de rêves, et j'en passe. Impossible de vraiment me rappeler des détails, j'ai juste des bribes, mais ça m'a clairement perturber le sommeil, je suis épuisé ce matin. Heureusement, on est dimanche, journée propice à ne rien faire devant la télé et dévorant les chocolats de Noël.
Bonjour les Mastonautes. Quelle semaine ! Dites-moi qu’on est au moins Dredi, siouplé! 😅😅😅 Et perfusez-moi: ☕️☕️☕️
#bonjour #bonnehumeur #fatigue #cafe
Many thanks for the article.
I think those findings sound credible for ME-CFS as well.
It wouldn't surprise me if they found that a prolonged period of stress plus the virus is why people find these conditions so hard to recover from. Maybe serotonin depletion and raised cortisol are indications of that.
The question is, how can we aid everyone's recovery in a world where time off is limited and disability support is limited?
Mich hat's heute mittag wieder gerissen. Musste mich hinlegen und hab über 2 Stunden geschlafen.
War aber bestimmt nur depressive Einbildung.
Das Urteil meines HA steht also fest. Alle meine Symptome kommen von meiner #Depression, auch das #Fatigue
Schau'n wir mal, was in der kommenden Woche der Neurologe sagt, oder ob ich mich doch besser erschießen sollte. ☹️
@gettingunstuck momentan blockiert mich vor allem unser #Gesundheitssystem und eine fehlende Diagnose zu #Fatigue / #LongCovid
Ich denke dabei wirst Du mir nicht helfen können.
Videoconferencing exhaustion has now been neurologically proven. https://spectrum.ieee.org/zoom-fatigue
#Videoconferencing #OnlineMeetings #Fatigue #ZoomFatigue #IEEESpectrum
Aujourd'hui à l'école de petite personne, on nous a dit, on va faire de la pâtisserie
OK
Il peut en manger ?
J'imagine que la recette est faite d'oeufs, de lait et de beurre
Oui
Bah non en fait (avec le sourire)
De toute façon, on les fait cuire l'après-midi, donc il n'en mangera pas
(Petite personne ne va que le matin à l'école)
En rentrant de l'école
T'as fait quoi ? De la pâtisserie ?
Oui
T'as gouté la pâte ?
Oui, j'ai mangé du beurre de vache
...
*longsoupir
#fatigue
#Zoom #Fatigue is Real, According to Brain Scans
spectrum.ieee.org/zoom-fatigue
#Videoconferencing #ZoomFatique #DigitalNomadTech #DigitalNomad
Das #PostCOVID-Syndrom (PCS) und #LongCOVID wird bei Kindern & Jugendlichen oft verkannt.
Häufige Symptome sind #Fatigue, #Belastungsintoleranz, Schlaf- und kognitive Störungen.
Die Diagnose stützt sich vor allem auf Symptomanalyse und Ausschluss anderer Ursachen.
Therapeutisch steht die symptomorientierte Behandlung im Vordergrund, bei PEM ist #Pacing obligat. Bei schweren Verläufen sind intensive medizinische Betreuung und spezielle pädagogische Unterstützung nötig.
MRI study spotlights impact of long COVID on the brain
CIDRAP
November 22, 2023
By Stephanie Soucheray
“A new study comparing magnetic resonance imaging (MRI) images of patients with long COVID, fully recovered COVID-19 survivors, and healthy controls shows microstructural changes in different brain regions in the long-COVID patients.”
https://www.cidrap.umn.edu/covid-19/mri-study-spotlights-impact-long-covid-brain
#BrainDamage #CognitiveIssues #COVID #COVID19 #CovidIsNotOver #fatigue #LongCovid #MRI #research #SARSCoV2
Après Ferrero, le comité des Champs-Élysées a trouvé un partenaire encore plus toxique pour les illuminations des Noël.
A revised #introduction post: I'm the #Church of #Scotland minister at Cambuslang. Graduate of #Glasgow University and #Princeton Theological Seminary- #Fulbright alumnus. Registered same-sex marriage celebrant. Occasional reposts or links in #German. Currently off work with #fatigue due to #Covid
#theology #Christianity #liturgy #politics #preaching #religion #ChurchOfScotland #Presbyterian #Reformed #faith #SSM
2 semaines d'arrêt de #travail, je vais pouvoir me reposer au grand désespoir de ma hiérarchie.
On me balance toujours une pique dans une phrase soit disant bienveillante du style "bonne convalescence, reposez vous bien, revenez nous en forme pour ne pas être prolongée pour les fêtes de fin d'année ça va chambouler le planning" 😑
#fatigue
Always tired? Read how #nutrition can influence #fatigue.
"...fatigue remains a complex symptom with multiple causal mechanisms..."
Guten Morgen Welt!
Der Montag kann schon wieder in die Tonne. Ich laufe schon wieder meiner AU-Verlängerung hinterher.
Die E-Mail an den Facharzt vom Freitag ist noch unbeantwortet und telefonisch gibt es nur das Wartesignal in der Warteschleife.
Habe ich schon erwähnt, dass unser #Gesundheitssystem im Ar... ist, und du dir als #Fatigue- / #LongCovid-Patient hilflos und alleingelassen vorkommst?
Euch einen gut versorgten Start in die neue Woche, und bleibt gesund.
The Whole World Is at Risk for ‘#Compassion #Fatigue’
I'm not a bad person if I choose to ingest the news once a week, right?
The daily madness is getting to be a bit much and I'm not sure we have much to gain from it. If it's something truly imperative that I need to know that day, I'll probably hear about it by accident.
I dunno', what do you think? What's the right balance to stay informed without losing your inner calm? #news #information #fatigue #stress
Interesting article on compassion fatigue and some steps to address it.
Link: https://theconversation.com/compassion-fatigue-can-happen-to-anyone-heres-how-you-can-overcome-it-217212
-----
#compassionfatigue #emotionalburden #emotions #desensitisation #compassion #fatigue #covid19 #pandemic #ukraine #russia #gaza #palestine #israel #naturaldisasters #humanplight #worldissues #mentalhealth
The problem with #fatigue (in this case I suspect post-viral) is that you can't just pull yourself together and snap out of it. The things that make you feel better, like a shower in my case, feel so very overwhelming that just thinking about it makes you need to lie back down. Today is a tough day. #MentalHealth
On est bientôt tous à mettre au rebut :
>OpenAI veut créer une IA aussi intelligente que les humains, avec l'aide de Microsoft
Devoir expliquer aux devs que non, la seule façon de détecter si unistd.h vu qu'ils ont pas de script configure c'est une liste de ifdef… #fatigue 😫
#travail #cuisine #physique #handicap #fatigue #machine #aide
Je vous assure que l'on y a pensé quand dans la cuisine les gens étaient épuisés d'être restés debout plus de 8h d'affilée... C'est génial ! Il l'a fait ! C'est super !🤩
https://www.20min.ch/fr/video/invention-etonnante-grace-a-ce-dispositif-des-invalides-retrouvent-leur-mobilite-519203293333
Individuals with HPA axis dysfunction often experience difficulty falling asleep, staying asleep, or waking up feeling unrefreshed.
Read more 👉 https://lttr.ai/AJy9C
#HpaAxisDysfunction #NaturalTreatments #AdrenalFatigue #Cortisol #Fatigue #Hormones
Réunion avec des voisins. Tout le monde trouve qu'il y a trop de voitures qui circulent, qui font du bruit et génèrent des nuisances. Et tout le monde trouve qu'il n'y a pas assez de places de parking pour pouvoir faire venir plus de voitures... #fatigue
"In essence, the #neurophysiological data—together with questionnaire data that we also collected—show that 50 min videoconferencing, if compared to a face-to-face condition, results in changes in the human nervous system which, based on existing literature, can undoubtedly be interpreted as #fatigue. Thus, individuals and organizations must not ignore the fatigue potential of #videoconferencing"
“how #coffee people have been dealing with temporary or permanent sensory loss due to #COVID and the implications on the #specialtycoffee industry”
“In the #coffee industry, we’ve seen #COVID discussed in the context of cafes pivoting to takeout or shutting down, short staffing because someone is sick, or forming unions because #COVID exposed issues. But not much about the long-term effects of #taste and #smell distortion or loss” https://sprudge.com/for-coffee-professionals-the-impact-of-long-covid-is-an-existential-threat-220560.html #LongCovid #brainfog #fatigue
C'est fou comme la parole de Mélenchon est tellement claire et limpide qu'il n'y a jamais besoin de se faire réexpliquer ses propos par ses soutiens inconditionnels qui t'invitent à de regarder 12 vidéos de 3 heures parsemés de tokens.
JLM a toujours raison, même quand il s'agit d'une opinion.
@jyrimatti I wrote a long post (of praise and critique) but scrapped it.
- this is not the original problem the original problem is https://code.icod.de/dalu/htmxginpongo/src/commit/401b401cacbd4cb4c1d46e0fea20480c3c19fa18/ui/templates/message/form.new.html.twig https://code.icod.de/dalu/htmxginpongo/src/commit/401b401cacbd4cb4c1d46e0fea20480c3c19fa18/ui/templates/message/fragment.html.twig
You have a form which creates a message, you don't query some api for just the timestamp.
- querying the server each 1s for a timestamp or a rendered representation of the message data for each message will put too much pressure on the server.
How do we execute JS after the request is made? hx-on::after-request But how do we transform the response by the parent? https://htmx.org/attributes/hx-on/ says
hx-on is not inherited Like onevent, two symbols are made available to event handler scripts: this - The element on which the hx-on attribute is defined event - The event that triggered the handler
So some lookup needs to be made utilizing this or event. Lucky we render <tr id="message-{{ message.ID }}"> so for the timestamp <td> we could add a <td id="message-time-{{message.ID}}"> And now, in our humantime JS function, we could run setInterval on the message-time-msgID's innerText Something like this pseudocode
const updateHumanTime = (elemID) => {
const elm = document.getElementById(elemID)
const ts = elm.getAttribute('data-time')
elm.innerText = dateJS.humanFormat(ts)
}
const humantime = (elemID) => {
setInterval(updateHumanTime(elemID),1000)
}
So.. what do we write in hx-on::after-request="" ?
However... " #Javascript #Fatigue" ;) Isn't that what we wanted to avoid with #htmx in the first place?
#vendredilecture
Du mal à lire. #fatigue #mood
J'ai commencé Les Mystères de Paris (Eugène Sue) dans le train il y a 2 semaines. Même pas peur.
Puis attaqué Le tigre blanc (Aravind Adiga) sur les conseils de mon frère (qui m'avait filé Les Choses de la vie, dans un moment difficile... Bah le film à côté c'est de la rigolade).
Mais À l'ombre de l'histoire des autres (Camille Lefebvre) me fait trop de l'œil...
Tout ça pour me plonger sans doute dans une bande dessinée dans le week-end.
Still suffering after a positive covid-19 rapid test on 9 October (more than 4 weeks ago).
The #cough has eased thankfully, but #headache near constantly, #BrainFog all the time, #HeartPalpitations making me uncomfortable, and never-ending #fatigue
Having #cardiology investigations over the next couple weeks, though specialist doesn't seem overly concerned.
The rest is apparently just to be expected and accepted. I'm still angry that I'm (even more) #disabled by this, and much of society says it's part of life. It didn't have to be. A few more masks and vaccinations in the community could have helped prevent this.
Après 10 jours sans #acouphène / #hyperacousie / #migraine / #fatigue , 2 jours d'attaque par un virus, et qui voilà ? Le combo gagnant ! Youhou, j'ai le droit aux 4 ce matin, un vrai bonheur !
Achevez-moi ou renvoyez moi en vacances (mais j'ai une préférence pour l'une des deux options quand même)
Me: I'm gonna get something done today!
Body: Uh, yeah, about that ...
Today has included: staring off into the middle distance, admiring the problem, and pretending to be in deep contemplation when in reality it's as shallow as puddle in there.
#Aerotelegraph - Flugsicherheit: Pilotinnen und Piloten fürchten um Sicherheit an Europas Himmel - https://www.aerotelegraph.com/pilotinnen-und-piloten-fuerchten-um-sicherheit-an-europas-himmel #Sicherheit #sicherheit #müdigkeit #fatigue #Video #EASA
I found this on the ex-bird site. Could be useful, maybe important, to others of our #ND (#NeuroDiverse) community?
SEDSConnective
@SEDSConnective
If you have some of these symptoms or conditions but feel not believed you might want to connect to us
http://sedsconnective.org
#EDS #HSD #SymptomaticHypermobility #JH #neurodivergence #Autism #ADHD #Dyspraxia #Tourettes #IBS #Fatigue #fibro #allergies #Palpitations #anxiety
La petite vieille qui laisse sa porte fenêtre toujours ouverte, pour que son chat accède à sa caisse qui est sur le balcon, trouve qu'il fait trop froid et qu'on devrait monter le chauffage de l'immeuble. Chez moi j'ai 21 et encore le soleil est caché... #fatigue
Passer deux soirées à essayer de comprendre pourquoi les notes de bas de page (et bien d’autres choses) ne fonctionnaient pas sur ma liseuse Kobo. Et comprendre qu’il fallait renommer l’extension .epub en .kepub.epub pour que tout fonctionne, CSS compris… Et qu’il ne faut pas demander à Calibre (sans l’extension KoboTouchExtended) de transférer sur la liseuse, parce qu’il renomme le fichier .kepub.epub en .epub…
Many in #Mississippi see signs of #change as #Black #voters #reengage.
#Mississippi's long history of #votersuppression has created widespread #voter #fatigue among #Black #residents in a state where they account for nearly 40% of the population
#Women #Transgender #LGBTQ #LGBTQIA #Conservatives #Extremism #Fascism #VoterSupression #RepublicanParty #Hate #Bigotry #Violence #Genocide #Discrimination #Racism #Homophobia #Transphobia #ThePartyOfHate #BlackMastodon
Okay, I started my #antidepressant prescription today! I was waffling on it, but then had another day yesterday where my #fatigue was so intense I could hardly move between sessions. Even though I had a run and two cups of coffee in the morning. The energy ain't energing.
Wish me luck! 🍀
"#fatigue as experienced by #longCovid patients is not like that associated with pulling all-nighters or even running marathons. People with long Covid cannot recover from fatigue by simply resting, and often wake up feeling tired. The clinical description, ‘post-exertional malaise’ (#PEM), is more accurate. It describes a devastating condition in which even gentle activity can precipitate a ‘crash’ that can make the patient bed-bound for days or weeks."
https://www.chemistryworld.com/features/battling-long-covid-with-drugs/4018238.article
I've been experiencing so much #fatigue lately I'm having trouble staying awake a lot of days. My therapist asked me to keep track of what I'm actually doing on a given day, so I took notes for about two weeks. I think this may be a clue about my fatigue. 😣
Je rêve d’une journée sans recevoir aucun email... 😔
I’m curious to find out from other #zettelkasten users / devotees with #meCFS / #ChronicFatigue / #ChronicFatigueSyndrome or any condition that causes #fatigue: How do you manage your zettelkasten with inconsistent spoons?
Every time I relapse, my #DEVONthink inboxes overflow, and the chaos this creates has broken several databases before because I couldn’t pick back up where I left off; clearing up felt more overwhelming than starting over but starting over also sets me back.
#IDMastodon #CovidIsNotOver This study focused on #longCOVID patients with #fatigue one of the most disabling symptoms of LC & provides insight into the clinical and immune profiles of fatigued and non-fatigued #longCOVID patients. #longCOVID with #fatigue is not associated with a clearly distinct immunotype but rather a part of the broader spectrum, as based on the immune parameters assessed . Increased severity of fatigue associate with immune parameters involved in #monocyte activation
> In a middle-ground scenario, by 2027 A.I. servers could use between 85 to 134 terawatt hours (Twh) annually. That’s similar to what Argentina, the Netherlands and Sweden each use in a year, and is about 0.5 percent of the world's current electricity use.
> Tech companies are touting new AI technology that can spit out business memos or computer code. They are still figuring out how those products will generate a profit.
Vive le partage libre des savoirs et l'Open science, mais faut-il vraiment organiser une "course au dépôt de texte intégral" avec "une machine à café à gagner pour le labo" qui aura déposé le plus proportionnellement ? #Fatigue
2/2 It's clearly not a question of if the accommodation could have been made. We proved it was possible. Only now, the majority felt it is no longer worthwhile or needed for themselves! Let's be honest that they could choose to be inclusive, but they have chosen not to be. Here is the link:
https://www.washingtonpost.com/education/2023/10/03/loudoun-corbo-lawsuit-dismissed/
#discrimination #disability
#virginia #DMV #ADA #spoonie #fatigue #lymeDisease #CFS
Brain fog and the inability to focus. A daily degrading of your ability to anything. Increasing stress and decreasing ability to cope. It all leads to not caring and a kind of winding-down to death.
You *might* have sleep apnea.
Turns out I do. News to me. Get help, it's fatal in so many ways.
🦇 💤 🛏️
Five hours afterwards my legs have turned to jelly so I'm going to sit down and eat something before I do anything else.
A nice 100k around the Forest but most of it targeting tempo pace or higher.
More than 3 yrs into #pandemic M of people who have suffered from #LongCovid finally have #scientific #proof that their condition is #real. Scientists have found clear differences in the #blood of people with long Covid key 1st step in dev of test to #diagnose. Findings published the journal Nature also offer clues into what could be causing the elusive condition that has perplexed doctors worldwide and left M w ongoing #fatigue, trouble w memory d#ebilitating #symptoms. https://www.nbcnews.com/health/health-news/long-covid-differences-blood-test-study-finds-rcna116871
My alarm went off at 8:30 this morning. I turned it off, thinking I'd sneak in an extra 10 minutes.
I woke up at 11:45. Arse.
One of the downsides of working from home on completely flexible hours.
Also, fuck #LongCOVID and the #Fatigue it causes.
@RikerGoogling in case of #Fatigue - yes.
8/
13. “I’m often so tired that even taking a deep breath is exhausting. I will even put off going to the bathroom for as long as possible because just walking the few feet from my couch to the restroom feels like walking a mile. My whole house feels like it triples in size on my bad days and everything is so far away.”
@chronicillness @spoonies #fatigue #chronicillness #chroniclife
#Spoonielife #hiddenillness
#invisibleillness #ChronicIllnesses #Spoonies
#Spoonie #ChronicallyIll
7/
8. “I’m on the verge of losing it at everyone because everything seems so loud, like it’s way louder than normal. And it’s so annoying it makes me angry. Like even someone drinking a drink seems like they have megaphone at their throat.”
@chronicillness @spoonies #fatigue #chronicillness #chroniclife
#Spoonielife #hiddenillness
#invisibleillness #ChronicIllnesses #Spoonies
#Spoonie #ChronicallyIll
6/
"7. “I’m in more pain than someone could even imagine. I wouldn’t wish this pain on my worst enemies. I don’t like to complain to those around me because if I did, I’d be complaining 24/7 and I don’t want to be ‘annoying’ or ‘a burden’ to anyone.”
@chronicillness @spoonies #fatigue #chronicillness #chroniclife
#Spoonielife #hiddenillness
#invisibleillness #ChronicIllnesses #Spoonies
#Spoonie #ChronicallyIll #ChronicPain #ChronicPainWarrior #ChronicPainAwareness
5/
6. “Some days it takes all day to get enough energy to shower, so around 3 p.m. I start to get terrible anxiety thinking someone will come to my door and think I’m lazy or dirty because the laundry is on the sofa, dishes in the sink and I’m unshowered and in bed in the middle of the day!”
@chronicillness @spoonies #fatigue #chronicillness #chroniclife
#Spoonielife #hiddenillness
#invisibleillness #ChronicIllnesses #Spoonies
#Spoonie #ChronicallyIll
4/
"4. 'Brain fog makes me feel so out of it some days; even the simplest thing is so hard to hang onto and comprehend.'"
@chronicillness @spoonies #fatigue #chronicillness #chroniclife
#Spoonielife #hiddenillness
#invisibleillness #ChronicIllnesses #Spoonies
#Spoonie #ChronicallyIll
3/
"2. “My housework falls behind, my washing falls behind, my sorting of things and objects falls behind. I want to have a clean and tidy house but find that dumping things in piles has been the only thing I can do now. I’m constantly tired of battling a fight I don’t think I’m ever going to win.”
@chronicillness @spoonies #fatigue #chronicillness #chroniclife
#Spoonielife #hiddenillness
#invisibleillness #ChronicIllnesses #Spoonies
#Spoonie #ChronicallyIll
2/
"1. 'I procrastinate showers because they’re just too much work, especially now with a central line. I don’t brush my hair between showers because it kills my arms, and my muscles get extremely fatigued and hurt. I really need help but hate asking for help and feeling like a burden.”
@chronicillness @spoonies #fatigue #chronicillness #chroniclife
#Spoonielife #hiddenillness
#invisibleillness #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
🧵
"17 Things I Don’t Admit on Bad Days With Chronic Fatigue*"
https://themighty.com/topic/chronic-illness/hidden-truths-of-what-chronic-fatigue-feels-like/
*Note that she clarifies "people with many illnesses experience chronic fatigue, but it should not be confused with #chronicfatiguesyndrome / #myalgicencephalomyelitis, a distinct diagnosis that also includes #chronicfatigue as a symptom."
@chronicillness
@spoonies #fatigue #chronicillness #chroniclife
#Spoonielife #hiddenillness
#invisibleillness #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
1/
Können Biomarker uns helfen, das Long Covid Rätsel zu lösen? Eine neue Studie kommt zu dem Schluss, dass Blutgerinnsel der Grund für Fatigue, Gedächtnisstörungen und Co. sein könnten. Mehr dazu erfahrt ihr von @buddepiept.
New Blood Test For Chronic #Fatigue Syndrome Has 91% Accuracy
https://www.sciencealert.com/new-blood-test-for-chronic-fatigue-syndrome-has-91-accuracy
> It can take years for people living with chronic fatigue syndrome to receive a formal diagnosis, and they are a favored few.
“What Does It Mean to Really, Truly Rest?” (December 2022)
https://www.self.com/story/what-does-rest-mean
#spoonie @spoonies #chronicillness @chronicillness #fatigue #fatiguetips #chronicfatigue #chronicfatiguesucks #pacing #rest #resting @mecfs #MEcfs #CFS #MyalgicE #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyE #ME #millionsmissing #CFSME @longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #postcovid
Feeling this 😴
Screenshot of a tweet by @ hellolanemoore:
let me get this straight depression / anxiety / adhd / chronic illness will make me not have the energy to take care of myself, but the only way for me to feel better is to take care of myself? what a scam"
J'ai testé pour vous : Le Babybel® matinal de ma cadette qui m'échappe des mains, et s'en va rouler DERRIÈRE le lave-vaisselle 🙄
De si bon matin, sachez que j'ai vraiment été tenté de l'y laisser...
Yes it did help to get out for a trail run.
It's a delicate balance, because it's an activity that really helps to renew and increase my energy, especially when I can do it at regular intervals. It helps my #fatigue a lot.
For example, getting out today will help me have more energy this afternoon, tomorrow, and even the day after.
BUT it's also an activity that takes a lot of energy to do. If I
overdo it just a little, I can be totally wiped out the rest of today, and even tomorrow.
Neue Erkenntnisse zu Long COVID: Eine Studie der @ChariteBerlin weist darauf hin, dass Handkraftmessung bereits relativ früh bei einer postviralen Erkrankung – wie etwa MECFS oder Fatigue – die Schwere des weiteren Verlaufs vorhersagen kann @martinruecker https://www.riffreporter.de/de/wissen/long-covid-mecfs-handkraftmessung
#LongCovid #MECFS #Fatigue #postcovid #corona #forschung #studie
"Fatigue Can Wreck You"
This conversation has one of those statements (see screenshot) that is common knowledge among ME/CFS patients but which often shocks the average person.
When I tell folks that ME/CFS is not part of the curriculum in most medical schools they are stunned.
And ME/CFS is not rare. There are 17-24 million patients worldwide and up to 2.5 million patients in the USA (source = CDC)
https://www.theatlantic.com/podcasts/archive/2023/08/fatigue-can-wreck-you/675030/
Seeing a lot of love for this
The Atlantic
What if your body forced you to stop?
People suffering from #longCOVID, ME/#CFS, & other energy-limiting chronic illnesses, experience #fatigue that is different from everyday tiredness—& they’re often treated not just with disbelief but with contempt. *Ed Yong* speaks with Hanna Rosin on why so many experience indifference to a debilitating condition
Podcast & transcript
https://shorturl.at/hxSTW
@longcovid @mecfs #mecfs
#spoonie
I have a really tough time trying to find games to play when my fatigue is bad. I do have some very laid back games, but those don't always sate the restlessness I end up feeling.
Here is a list of things preventing me from playing certain games when too fatigued:
- Dizziness/vertigo: I always have this. It becomes harder to manage when I am fatigued.
- Photosensitive head pain: harder to manage as well and always present. Flashy effects hurt.
- Brain fog: games with good stories are not his in these moments since focusing on story becomes very mentally teasing.
I've been playing Palia which is great but it's very laid back and doesn't suit those moments when I want a bit more activity from a game.
I wondered if anyone here had suggestions. Sadly first person games are tough when fatigued as are games with heavy story since it's hard to focus. My reflexes are much slower than usual as well.
I would greatly appreciate suggestions.
#disabledGamers #actuallyAutistic #games #gaming #disability #fatigue
It's 6:00 in the morning and I think I finally feel like I can sleep. This whole situation has had me so stressed out that I haven't been able to sleep all night and my head's been pounding but #fatigue is winning out. She gets so upset and convinced I'm being naive and the way she acts kind of scares me.
The 'sad bastards cookbook' is a free cookbook for people with zero spoons.
What an important work!
I don't normally write about this stuff. But this is a big part of my life so maybe I shouldn't avoid talking about it entirely, and this article about fatigue is amazing - really deserves some comment.
It's really hard to explain fatigue to people who haven't experienced it. I feel like the word 'fatigue' is not sufficiently precise - because in English we tend to strongly associate 'fatigue' with 'tiredness'; it's almost like there's a lack of linguistic diversity which leads to miscommunication and misunderstanding.
The pain, the way your brain physically recoils from certain things, the difficulty forming sentences or remembering words - or even sometimes how it can take time / effort to recognise faces. The way your brain can feel 'bruised' after hard mental activity (like training or meetings). The flu-like symptoms after doing too much. The difficulty standing. The difficulty controlling your hands properly - like your nerves aren't responding at 100% - smashed more things in the last few years than my entire adult life before that. The strange things - like doing common actions out of order for no obvious reason, or how it can be hard to plan out multi-step activities even though you can perform the individual steps just fine, or the random bouts of dizziness when you're not even moving. Or how mental activity can leave your limbs aching heavily like you've done weights - how does that one make any sense?!
The article captures the experience so well. I feel so seen by it. Thank you Ed Yong.
A few quotes in particular stood out. But the whole thing is worth reading.
Most people experience the desperation of being unable to move only in nightmares, Dujardin told me. “PEM is like that, but much more painful.”
Yes - like that. Lying on the floor, unable to get up, like an elderly person after a fall. Body burning all over, like your muscles are screaming - such an intensity of feeling and sensation. That's not 'tired'.
Mary Dimmock told me that she understood what it meant only when she saw her son, Matthew, who has ME/CFS, crash in front of her eyes. “He just melted,”
One minute, everything seems normal; the next, you can hardly form a sentence and speech feels slurred, head filled with cotton wool. Like a switch has been flicked and your body - and mind - turned off. The word 'crash' totally captures the speed and jarring nature of the experience.
“It takes so much self-control and strength to do less, to be less, to shrink your life down to one or two small things from which you try to extract joy in order to survive.”
(The quotes may not format right in Mastodon - view original page will show them better)
https://archive.ph/YpN2F
#LongCovid #MECFS #Fatigue #PEM #PostExertionalMalaise
Does anyone know where I can read this WHOLE article w/o signing up for the Atlantic? I need to share it with family. #LongCOVID #PASC #Fatigue
https://curio.io/publications/the-atlantic/ed-yong/fatigue-can-shatter-a-person
Et là je me rends compte que les journalistes qui ne lisent que l'exposé et pas le projet de décret (qui est certes illisible) tombe dans le panneau (numérique) de la com du gouvernement.
@riffreporter Wer #Durchseuchung sagt, muss auch #Forschung sagen. Das ist das Mindeste, was die Politik für Betroffene tun kann. #LongCovid #PostCovid #Therapie #MECFS #Fatigue #PEM
#Introduction: Hey lovelies! I'm El (they/them.)
I'm a 40 something #nonbinary person living in south #Wales in the #UK with my wonderful husband. I'm late-diagnosed #AuDHD.
I'm on sick leave at the moment dealing with the challenges of #depression, #anxiety, and #fatigue, possibly all a result of #burnout. The biggest challenges are asking for help,
and adjusting to the change of routine.
I've written too much in this #intro, so I'll share my interests in another toot!
making an #introduction for the new people who are looking for people to follow!
i am a #nonbinary #transguy from #germany, i am #disabled with #mecfs, #eds, #mcas & co and can infodump you about DIY #chronicIllness management for hours on end, i use a #wheelchair, i have messed up sleep, i am also very neurodivergent and mentally messed up but i have moved away from identifying myself with psychiatric diagnoses.
i post a lot about my life and random shit, i am in the process of #writing some books (in german, sorry), i am also learning #french and #dutch and i like #linguistics and basically i am one little ball of #fatigue and special interests.
and this is what i look like
#covid #COVID19 #therapie #press #LongCovid #fatigue
Institut für Qualität und Wirtschaftlichkeit im #gesundheitswesen (IQWiG) im Auftrag des Bundesgesundheitsministeriums über ME/CFS zusammenfassend
10/22
...lässt sich die Anzahl von
PatientInnen mit #mecfs in #deutschland in einer Größenordnung von etwa
140 000 bis etwa 310 000 schätzen. Es erscheint plausibel anzunehmen, dass es infolge der
SARS-CoV-2- #pandemie zu einem Anstieg der ME/CFS-Prävalenz kommen kann...
https://www.iqwig.de/download/n21-01_me-cfs-aktueller-kenntnisstand_abschlussbericht_v1-0.pdf
If 99% of your selfies are taken in bed, you might have severe fatigue! #themoreyouknow #fatigue #tired
Cognitive behavioral therapy (#CBT) helps with severe #fatigue associated with #LongCOVID. The CBT addressed disrupted sleep/wake patterns, unhelpful beliefs about fatigue, low/uneven activity level, perceived lack of social support, psychological processing of COVID, fears and worries about COVID, and coping with pain.
#TWiVTLDR 7/7
#Tick bites 3.5 weeks ago, one of which was on for 24 hours. No EM rash, but a persistent small one. Finally went to dr on Saturday to start antibiotics just in case. Overwhelmingly fatigued and a little cloudy-headed the last few days. Confirmation bias, allergies, or #Lyme symptom? Either way, not a fab way to feel, starting the week. #SoTired #fatigue #JustWantToSleep