#fibro
StudyME (Please!) The Open Medicine Foundation’s Project to Accelerate ME/ #CFS, #FM & #LongCOVID Research
https://www.healthrising.org/blog/2023/09/23/study-me-open-medicine-foundation/
"I know of at least two #MECFS studies that failed to get completed because they failed to find enough participants. That’s a horrible thing to have happen in a field that needs every research dollar it can get its hands on."
@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME @longcovid
#PwLC #postcovid @fibromyalgia
#Fibromyalgia #Fibro #FMS
It’s been about 6 weeks since I got covid, and I still feel like shit.
My joints are the worst they’ve benn for a while, and the headaches are so bad. Also have a poorly cat to look after. I’m exhausted, so haven’t been posting/engaging much.
Being chronically ill, I’m used to living with pain, but nothing is helping this 😩
#Fibromyalgia #Fibro #Diabetes #ChronicFatigue #CFSME #CFS #ME #MentalHealthDisorders #Autistic #ADHD #AuDHD
#Covid Question:
I've had symptoms for about a week now. But it also could be a #fibro flareup or who knows what. Tests show negative but they seem to be pretty unreliable. Especially with the new version.
The most disturbing symptom is my head feels like it's been vacuumed out and there's just this empty slightly dizzy void left behind. Is that a symptom others have experienced?
2-minute segment on (US) WFRV Green Bay TV
#Fibromyalgia or #CFS?
https://news.yahoo.com/healthwatch-fibromyalgia-chronic-fatigue-9-222152330.html
Tries to be sympathetic but somewhat flawed e.g. says fatigue rather than PEM is cardinal symptom of CFS & says "important to stay active" with video of person doing weights 🤦♂️
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE @fibromyalgia
#Fibromyalgia #Fibrositis #Fibro #FMS #FM #Wisconsin
Ugh. I went to see a new pain doctor yesterday and I still ache from the exam.
"Does this hurt?" Yes. "Does this hurt?" Yes, but differently. "Does this hurt?" Can you give me a minute? I'm waiting for the pain from the last thing to subside. "Which hurts more? This or this?" I can't tell. The pain from the last thing is kind of overshadowing it.
I just moved my shoulder and the tender points he was poking at flared up again.
I don't do well when the weather changes from summer to autumn.
Yesterday was not a good day.
Today is a new day. The sun is out.
I will put an extra layer on and see how I get on.
#fibromyalgia #fibro
#eachdayasitcomes
Lunch & Learn – Virtual Event September 21
https://batemanhornecenter.org/event/lunch-learn-virtual-event-42/
Topic: Stories: A Way to Share Hope & Connection
"These friendly sessions include a brief presentation by a participant, followed by break-out groups to discuss the "get to know you question." Individuals with ME/ #CFS, #FM, #LongCOVID and their supporters are invited"
13:30 EDT/18:30 in GB & Ireland
Find the time in your time zone here:
https://www.timeanddate.com/worldclock/fixedtime.html?msg=Lunch+%26+Learn+%E2%80%93+Virtual+Event+September+21+&iso=20230921T1130&p1=220&ah=2
@mecfs
#MEcfs #PwME @longcovid
#PwLC #postcovid #Fibro #FMS
1/
Full text just released for this from Spain:
Increased gut permeability & bacterial translocation are associated with #fibromyalgia and #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome: implications for disease-related biomarker discovery
https://www.frontiersin.org/articles/10.3389/fimmu.2023.1253121/full
@mecfs
#MEcfs #CFS #PwME #MyalgicE @fibromyalgia #Fibrositis #Fibro #FMS #FM
Sister came to visit this morning before I went to bed. We sat in awkward silence for a bit, until she said, "Your body language tells me you're bracing for me to say something awful."
I wish I'd had the presence of mind to be properly poetic to convey the truth of the situation: "I took extra painkillers on top of my prescription painkillers, and still every bone in my body is screaming at me in a different voice, and I'm trying to tune them all out so I can hear you." #Spoonie #Fibro
A later than normal "hi" to friends here. We have a random increase in warmer weather this week, meaning I didn't want to game earlier which would make my office even warmer.
But I still have this bug and have had a tough 24-48hrs of higher #Fibro pain as a result.
Yesterday I took a break from tomestone earning and continued the post ARR story and Crystal Tower arc on my other Miqo'te in #ffxiv
"Wexford woman on a lifetime of chronic pain–‘if I ever get bed-ridden again I’m going to end my life’"
Yvonne tragically spent 7 years bedbound with ME. This gets across the difficult life she has had due to ME & #Fibromyalgia
Shared with journalist's permission
We had difficulty getting an interviewee: thanks to Yvonne for stepping forward 👍
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia
En français:
Alain Moreau:
La signature biologique laissée dans l’organisme par la fibromyalgie (le 12 mai)
https://www.youtube.com/watch?v=ZPfE8vMZb8Y
#fibromyalgie #Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia
Come back to me when you have a chronic pain condition and covid, my step dad telling me covid is just a cold 🤬
#Covid #Covid19 #Fibromyalgia #Fibro #CFS #CFSME #ME #ShowThatYouCareWearAMask #FaceMasks #HavingAMoan
I have just woken up.
0815!
After 8am !!!!
And I am pretty sure I slept all the way through the night.
I can't remember the last time this has happened.
Got to get moving now and keep this positive vibe going 🤞
New from Spain:
Increased gut permeability & bacterial translocation are associated with #fibromyalgia & #MyalgicEncephalomyelitis /#ChronicFatigueSyndrome : implications for disease-related biomarker discovery
Only abstract available currently
https://www.frontiersin.org/articles/10.3389/fimmu.2023.1253121/abstract
"Biomarkers of intestinal barrier function and inflammation were associated with autonomic dysfunction assessed by COMPASS-31 scores in #FM & ME/CFS respectively"
Today I am officially a "healthy weight" according to the NHS.
However, that isn't why I lost weight.
I've lost weight because I feel better like this and my #ChronicPain is less bothersome like this. My #Fibro flares less when I'm lighter, I don't have to crawl up the stairs as often because my body is so exhausted it feels like gravity has been turned up to 11.
I don't care how thin I am. I care about feeling better and participating in life more!
Yesterday my ex was coming over to see the kids, he text about an hour before, saying his gf has a cold, so might stay and look after her.
Meanwhile, I feel like I’m dying most days and just have to get on with it. I’m so fed up of people not realising how difficult functioning day to day is.
I’m either having the worst flare up after traveling, or have got a bug as well 😩
#Autistic #ADHD #AuDHD #Fibromyalgia #Fibro #ChronicFatigue #CFS #Depression #Anxiety #Exhausted #EverythingHurts
Does anyone else with excess lymph get that taste at the back of their throat during lymphatic drainage?
I have #fibro so I have to be medicated first but shiatsu massagers helps with inflammation.
A lot of people cannot tolerate it at all so I don’t recommend doing it unless you must. If so, I have a shiatsu massager.
I’d follow with alternating in-person massages when I could afford it, back when I could go outside.
Hate that taste though.
I'm glad my LOTRO guides are needed by the community. I just wish my own code didn't always fuzz out at crucial moments. So, it's been a stressful 48hrs, making my #Fibro flare up.
I missed it yesterday, so now it's #MiqoteTime in #FFXIV.
Me whenever I meet anyone new IRL or online anywhere 😂 #meme #thoughtoftheday #wednesdaythoughts #randomthoughts #bpd #BPDfam #MadMastodon #MadTwitter #disability #disabled #chronicillness #chronicpain #chronicfatigue #chronicfatiguesyndrome #neurodivergent #neurodiverse #mentalhealth #mentalillness #spoonie #fibromyalgia #fibro #twittermigration
2 hours sleep would be good 😂
#Autistic #ADHD #AuDHD #ChronicFatigue #CFS #Anxiety #Depression #Agoraphobia #AdjustmentDisorder #ChronicIllnesses #Fibromyalgia #Fibro #FibroFog
Was a painful, restless night & a bad fibro day.
Top to toe and spasms
Maxed out on pain meds and diazepam.
Loving the nature pics and whimsy posts, helping me to stay positive.
Just about noon and off for a hot bath.
It feels like a bloody long day already
Ruling from Spain:
"Judge admits disability due to fibromyalgia, which Social Security rejected"
2/
Martine McCutcheon: “I also ask my friends to google CFS / #fibro symptoms. If they love you, it’s the least they can do! Understanding helps with support. So thank you to our friends who came with a few hours notice!
@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE
Journée douleur et migraine à errer entre le lit et le canapé, et maintenant qu'il est minuit passé, mon corps refuse d'aller se coucher. Yep, c'était un beau dimanche #fibro
Sinéad O'Connor obituary
https://www.bbc.com/news/entertainment-arts-35031186
In 2003 she announced "she was retiring from music. Both her mental and physical health were suffering, Diagnosed with bipolar disorder, she was also battling the painful condition of #fibromyalgia."
Am trying to convince myself that I am feeling better and this current bug has gone.
Positive thinking is not yet winning, but I've not given up yet. Looking for my lost spoons.
If its not one thing its another
/stretch
Because I badly planned this week, then was caught off-guard and had to change my plan twice, and my brain's been awfully distractable, I've lost most of my rest time this week.
It's not been good for my #Fibro pain.
I'm not losing my gaming rest time in either game next week, it's not good for me.
Time for an hour in #ffxiv before I sleep. I need a bit of #MiqoteTime.
Traveling is a struggle
#kronik #mastoart #comic #chronicmonster #travel #doodle #struggle #ducksky #fibro #fibromyalgia
I work really hard to only get into my bed when I’m ready for bed. No eating, reading, watching movies, checking my phone, etc in bed. Part of having #Fibromyalgia is having to practice good sleep hygiene. But another part of #fibro is just the VERY STRONG desire to take my bag of Oreos & climb into bed at 7pm & watch Schitt’s Creek because I’m tired & in so much pain 😭 #Spoonie #ChronicIllness
@Curator
Hello! My name is Leonie and this is my lovely studio assistant Motto. I'm an artist with fibromyalgia and ADHD and that can put a strain on ones mental health so I create art to make myself feel better and to hopefully make others feel better too!
You can find everything all my fun links on my links page :
https://www.artbyleoniejonk.com/links
Buy my art & products :
https://artbyleoniejonk.etsy.com
Or even support me on Patreon!
http://patreon.com/leoniejonk
I rarely pretend that things are ok, sometimes it’s the less exhausting option though. Things are not great, but I’m working on them. I wish someone could come and sort my house out for me.
Diabetes check up with nurse today, and gp appointment about new leg pain.
#Autistic #AuDHD #ADHD #ChronicPain #ChronicFatigue #Fibromyalgia #Fibro #Diabetes #MentalHealthDisorders #Exhausted
I think it's time for a nap. Watching Russia implode is exhausting. Also, I hurt everywhere. Stupid #Fibro
👋 hello~ time for an #introduction!
this is my chill-space (aka, a personal side account)
📝 basics:
- hi hi i'm beso! ("kiss" in spanish)
- xe/he pronouns (more info on https://en.pronouns.page/viralvulpes)
- late 20s
- i'm a #singer and #artist, though i can't take art commissions often due to my health. (i post my creations in the tag #BesoMakesThings)
👤 identity:
- soy xicano! i live in the usa
#xicano #chicano #latino
- i'm bi and polyam, in a throuple relationship
#bisexual #polyamory
- i'm a nonbinary just-some-guy (tme)
#trans #bigender #nonbinary
- mentally ill and neurodivergent
#depression #adhd #autistic #AuDHD #kinetic #KineticAutistic
- proudly (and exhaustedly) disabled
#disabled #fibro #mecfs #cfs #arthritis
💖 likes:
- #tech #FOSS #libre
- #VideoGames #IndieGames #TTRPGs
- #manga #manhwa #manhua #webtoon #anime #WebNovel
🔗 links:
- main: @viralvulpes@tech.lgbt
- fandom: @viralvulpes@urusai.social
- tumblr: https://foxpunk.tumblr.com
- discord: dm me to ask!
📌 new pinned post! so i don't keep editing the old one haha
this is my main account, where i'll mostly post about tech, news, activism, and similar subjects.
📝 basics:
- hola~ i'm beso! ("kiss" in spanish 😚)
- xe/he pronouns (more info on https://en.pronouns.page/viralvulpes)
- late 20s
- i'm a #singer and #artist, though i can't take art commissions often due to my health. (i've posted some are here in my #BesoMakesThings tag)
👤 identity:
- i'm a latino who lives along la frontera in the usa
#xicano #chicano #latino
- bi and polyam, in a throuple relationship
#bisexual #polyamory
- i'm a nonbinary just-some-guy (tme)
#trans #bigender #nonbinary
- mentally ill and neurodivergent
#depression #adhd #autistic #AuDHD #kinetic
- proudly (and exhaustedly) disabled
#disabled #fibro #mecfs #cfs #arthritis #CripplePunk
- very VERY vocal leftist
💖 likes:
- #tech #FOSS #libre #accessibility #design #art
- #VideoGames #manga #anime #WebNovel
🔗 links:
- personal: @viralvulpes@cutie.city
- fandom: @viralvulpes@urusai.social
- discord: dm me to ask!
#fibro #autism
I'm in a similar boat. My daughter just got an official #autism diagnosis though it's been suspected for years. I've suspected myself, I guess, for about 3 years but only recently did enough research, had enough lightbulbs, etc. to identify #ActuallyAutistic.
I've found this online community extremely welcoming and affirming. wherever you end up, it's your journey and you know best.
Ignore the haters.
@Pathfinder I feel like light bulbs are going off the more I learn. It’s kinda scary though because I’ve mentioned it to a few people so far and I’ve already felt dismissed. Makes it harder to pursue. It’s feels acceptable to get my kids screened but not me because why bother. I’m just a mom and moms are supposed to just push on through. I have #Fibro & I know I’ve been masking around that for a long time so it could just be my way of coping with chronic pain that feels like it could be #autism
@TheJewberwocky I talk about it sometimes but it isn't a main focus of what I post (aside from occasional venting about my chronic pain issues). The #fibro/#fibromyalgia hashtags can be pretty helpful for finding folks with that particular symptom complex, though.
2/
"Every day people enter the court to hear whether they can claim disability support and end up being punished for having a condition that is not easily diagnosed. And can’t be treated. It is not just those with ME/#CFS either, but lots of other associated chronic conditions — #POTS, #Fibromyalgia, Chronic #Lyme Disease, #LongCovid. We all run the same gauntlet"
@longcovid @spoonies @chronicillness @chronicpain #Spoonielife #hiddenillness
#invisibleillness #MEcfs #Fibro #MyalgicE #PwME
New from Moreau team in Canada:
"Circulating microRNA expression signatures accurately discriminate #myalgicencephalomyelitis from #fibromyalgia and comorbid conditions"
Free:
https://www.nature.com/articles/s41598-023-28955-9
"The results of this study demonstrate that ME/#CFS & #FM are two distinct illnesses"
@luckytran I'm sure you've heard this before, but -- Welcome to Planet Chronic Illness! We've been here a long time. Plenty of room for our LongCOVID brethren here. People with #mecfs , #fibro (ME/CFS & fibromyalgia) among other "garbage can diagnoses" have been fighting this fight, often from our beds, for decades. It's a tough one. Many of us learn: try not to let the fight itself sap all our strength and healing potential. Slow and steady does it.
Question for those who use heart-rate alerts for #pacing: How do you personally calculate your alert level?
I ask because I see two different methods recommended. One is to take 50-60% of the typical max for your age (with some variations). The other is to set it at 15bpm above your resting heart rate.
I've been doing the former method for awhile, and experimented this morning with doing the latter. Wow, it's really hard to stay in that more restricted range! So I'm wondering which one folks here are using.
#MECFS #ME #CFS #fibromyalgia #fibro #ChronicIllness #LongCOVID
I don't think HRT researches have really looked into the connection between #HRT and #Fibro symptoms for #transmasc people yet because we kinda barely exist but, anecdotally, I've noticed, that testosterone shots dramatically improve my fatigue and base level of pain.
"What My Loved Ones Need to Know About Life With #Fibromyalgia" (2017)
https://themighty.com/topic/fibromyalgia/letter-to-loved-ones-about-life-with-fibromyalgia/
Somebody with ME/#CFS could also written a similar letter
""I struggle each and every day, so please ease up on the expectations, accept that I cannot do some things, respect there are limitations and don’t take things personally."
#Fibro #FMS #FM @chronicillness @spoonies #Spoonielife #hiddenillness #invisibleillness #Spoonies #Spoonie #chronicillness
23/
“Communication is Key
Please don’t assume you know how I am feeling or what I can or cannot do. It changes constantly, and if we maintain a safe and open place to talk about what’s going on, we will better understand how to support one another through this. If you are unsure how to help, just ask”
#chronicillness #hiddenillness #chronicpain #invisibleillnesses #fibro #fms #mecfs
And so it begins. I suffer from chronic pain, and winter is always the worst. I usually fall apart during or just after Christmas (depending on temperature and other stress factors), so despite very low stress the freezing cold got me. Thankfully I often have a cat to keep me company in bed, and my Kindle won't run out of reading material any time soon!
#ChronicPain #pain #fibro #fibromyalgia #caturdayeveryday #caturday #cat #cats #catsofmastadon #catitude #catpasity #felineosophy #catcontent
Me too, little fox, me too.
#NEISVoid #MECFS #ChronicIllness #ChronicPain #ChronicFatigue #EDS #POTS #Fibro
@bennessb Hi! I'm Effie. I have #MECFS, #migraines, and very possibly #fibro. I really liked the #NEISvoid community on Twitter and would love to see more of that here!
I'm also intermittently working with two big ME/CFS orgs, #MEAction and the Open Medicine Foundation, so I have a good line on some technical answers.
I was talking with a friend yesterday about how, at one point, neither of us would have understood #SelfDiagnosis or developing one's own treatment plan. But that was before both of us got put through the wringer of of the #medical system.
I'll spare you the details, but none of my diagnoses came without me knowing it first and seeking out the diagnosis. I've been dismissed and invalidated, for many years, by many doctors.
I've gone without care and figured out how to reverse symptoms of one condition, and been disbelieved by physicians.
I have some semi-helpful diagnoses now for my most pressing issue, but I have medical questions and no access to the care that could answer them. So I'm on my own, yet again, managing for myself.
So now, if I hear of someone diagnosing themselves and/or treating themselves, I get it. When you can't get a #physician to help you, you either sit around and deteriorate, or you go into research mode and figure the damn thing out yourself.
#HealthCare #NEISVoid #LongCOVID #MECFS #ME #CFS #fibro #fibromyalgia #ChronicallyIll #ChronicIllness #doctor #MedMastodon
My condition isn't new, but understanding it's #COVID related is. I had #HipsterCOVID (meaning I was an early adopter, prior to the start of testing), and I've been blaming my symptoms on another condition.
I have diagnoses of #CFS and #fibro from a doctor who says she doesn't know which it is and doesn't think it matters, but she does think it was triggered by whatever that virus was that I got at the end of February 2020.
I can't access better medical care, but I'm good at research and reading. I'm learning all I can, and the pieces are coming together. So I'm daring to put myself out there as part of the #LongCOVID community, even though everything is still ill-defined and unprocessed.
*shrug* Only people who get it, get it, I guess.
#MECFS #fibromyalgia #ME #NEISVoid #ChronicallyIll #ChronicIllness
Folks who use #pacing to manage #PEM #PENE #PESE:
What are your personal early-warning signs that you need to stop now to avoid a crash/flare?
Heart rate? Pain? Dizziness? A certain point of fatigue?
Just curious what signals everyone else has identified. I imagine there will be some variation here, but maybe sharing ideas of little signs that we notice might be broadly helpful.
#pwME #pwLC #fibro #fibromyalgia #LongCOVID #MECFS #ME #CFS #NEISVoid #ChronicallyIll #ChronicIllness
Folks with #MECFS or #fibromyalgia, would you kindly share tips, tricks, and life hacks related to #pacing?
#ME International recommends using a heart rate monitor to determine how much you can exert yourself before a crash. Anyone try that? (bonus points if you can recommend a good monitor available in the US)
I'd also just welcome any personal stories of how you manage to balance your needs for activity and rest.
Note: Doctor can't tell me whether I'm dealing with #fibro or #CFS and has semi-diagnosed me with either one or both, so until I can get a better answer, I'm looking to connect with people in both categories. Thanks.
Today's post expanding on my #bio and #Introduction:
I am #disabled.
I have a chronic pain disorder called #fibromyalgia. #Fibro is similar to #MECFS, and is characterised by fatigue and altered sleep, memory and mood.
Widespread muscle pain and tenderness are the most common symptoms.
The way that it manifests for me is pain in around my joints, particularly my shoulders, wrists, and hands, and my knees and feet. Most days I have a background pain level of about 3/10, and my flare-ups pop up to a pain level of about 6-8/10.
I also have back issues that stem from the years I spent as a nurse - I have compressed discs in my cervical spine, in my lumbar-sacral spine, and a zygapophyseal joint around T7 that keeps dislocating.
I'm in pain most days, but I think worse than the pain is the utter exhaustion from dealing with it constantly. I also get frustrated because I used to have a very strong and capable body, and now there's so much that I just can't do.
I'm also #MentallyIll - I have #cptsd, #ocd, #agoraphobia, #anxiety, and some other bits and pieces of cluster-b disorders.
I'm #autistic and have #adhd, my #autism is #SelfDiagnosed at the moment but my psychologist agrees with my assessment, my adhd was diagnosed by a psychiatrist only last year (I'm 48 - if you want to talk about late diagnosis, let me know).
There are other things I deal with like #diabetes and #migraines, but the fibro and spinal injuries are the main ones.
(..continues next post)
🧵
Healthwatch Sheffield &
Sheffield ME and Fibromyalgia Group, worked on a project to help improve health & social care provision for people with ME/CFS & #fibromyalgia in Sheffield.
The focus was to identify barriers to accessing appropriate care, and find solutions
Report:
https://www.sheffieldmegroup.co.uk/post/speakup-the-results
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #ME #MyE #MEeps #CFSME #CFIDS #SEID #NeuroME @mecfs #Fibro #fibrositis
1/
(#SunshineCoast, #QLD, Australia)
“Novel brain imaging study seeks answers to chronic fatigue mystery”
https://medicalxpress.com/news/2022-11-brain-imaging-chronic-fatigue-mystery.html
Seeks
-People with #MEcfs
-People with #Fibromyalgia
-People with unexplained #fatigue
-Sedentary healthy controls
#CFS #Fibro #PwME #FMS #FM #Fibro #chronicfatiguesyndrome #myalgicencephalomyeltis @mecfs
This latest Covid vaccine booster has not only turbocharged my #LongCovid symptoms but I think it’s sending me into both #Fibro and #CRPS flares all at once. I really hurt, and I’m exhausted. Just holding my phone and swiping to text is painful.
I didn’t expect this after I had almost zero after effects last booster, but I’d forgotten that was pre Covid, and long Covid.
I have plants to pot tomorrow and I honestly don’t know how I’m going to do it. Right now I just want to curl up and cry.
Just had a difficult doc's appt. and I'm here to say: please don't assume that because a person is overweight, they don't like or want to exercise. I *constantly* encounter this assumption. I LOVE hard exercise, and miss it very much.
When I bring up having #fibro and #MECFS, I'm immediately told "exercise will help," which is an extremely loaded and inaccurate generalized comment to make about those conditions.
Bahh. Why are docs like this? I need tea.
Question for #creative professionals and working #artists who also suffer from #ChronicHealth issues.
Has anyone ever come across a website/organisation focused on helping that subset of people?
I could swear I came across something like it a few years ago but my focus was a bit different then and my hurdles not as large. So I didn’t take note. It wouldn’t surprise me if it no longer exists but IMO it still should.
I wish I’d bookmarked it.
@RoryCJ I tried this for the first time this morning. Needs more data gathering before it shows me any results though.
I’ve had huge benefits from smartwatch tech over the last year or two. First the Garmin bodybattery. Then on Apple Watch an app called Athlytic blew that out of the water, with pinpoint accuracy I could show Drs where I was crashing.
I’ve also found a new app called Gentler Reach is helping me thread the needle between over exertion and no activity at all.
Hi, checking out Mastodon, still on Twitter. Below is my bio so hashtag searches can find me. Also here for #Calgary and other #Canada discourse e.g. #abpoli, #ableg, #yyccc, #yyc.
Caring for loved one whose complex #chronicillness & #chronicpain include #MEcfs, #POTS, & #Fibro. Decades-late biomedical research funding means no end in sight: #NEISvoid.
https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome
https://www.meaction.net
https://www.dysautonomiainternational.org
https://www.omf.ngo
https://www.nice.org.uk/news/article/nice-me-cfs-guideline-outlines-steps-for-better-diagnosis-and-management
https://mayoclinicproceedings.org/article/S0025-6196(21)00513-9/fulltext
Hoping to find people with similar interest
#genealogy
#outlander
#nature
#fibro
#birding
#astronomy
#arkansas
#Razorbacks
#Ghosts show and in life
#yellowstone
#80smusic
So much more but this is a start.